Catching up

We had a wonderful Sedar. Danielle and Alex were here along with Rhonda's mother (who has been almost a mother to me for he past 25 years. Our niece Cara was also up from NYC and that was also a pleasure. Made us realize we should make a geater effort to have hxer visit us.

Medically I 'm having a minor set back. My platelet count is low so they will not restart the Temedor or the avastine until the levels are back up. Igo for blood tests Friday and we will see. Symptom wise nothing is really changing. a few more headaches bu certainly no worse than before.
I'm stillhaving some left visual field problems. I walked into a barrier by theWegman's pharmacy. Didn't hurtmuch more than mypride but it waas embarasssing took a bike ride withAlex andwaited tolong,itgot pretty hot so Iquit halfwaythrough which I thoughtwas a verygooddecision. problem was when I disconnectedfromthe pedalsIwent thewrongdirectionandtook a small tumble. no injuries, againbesidesmypride. both of those accidents really push tothe forefront my need to make better decisions and paybettteratention. If I amgoing to use mynew(er) road bike Iwill have to practice more with those pedals.

I'vetalked about feeling like I am onarollercoaster. It used to feel like the occilations were daily. Now it seems the ups anddowns are within eachday.

I strongly encourage anyone inasimilar situation to get a hold of last week's AB C PrimeTime withDianSawyer wheresheinter iewsRany Pauchefr onhis CarnagieMellonLast lecture. It agreaat perspective for individuals andfamilies facing a terminalillness. Hisapproachmake so muchsense. He also has a book, The LastLecture. It is a bit diffficulto getnow bu well worth it. If you want,Icanburn theDVDfor you; Again well worth it exspecially if you aredealing with a terminal inllness andhav a family. After you have watchedtheshow or read thebookIwouldlove to talke to you about it.a

With love and constant hope

Gary