Scan

As everyone who has gone through this has told me. Today and the past few days have been incredibly distressful. I have my scan late this afternoon and I meet with my oncologist tomorrow morning to go over the results. As a result of my stress level I probably have been taking it out on my family and can't apologize to them enough.. After my last scan I was expecting bad news as i thought my physical condition was deteriorating. then my Dr said I had a dramatic improvement. This month I have been feeling great and expect good results that makes me nervous.

Had a great visit with my nephew Richard and his wife Janice. It is hard to believe that this little kid I used to babysit is now 40. I certainly have been blessed with wonderful family

Latest news 7/25/08

Just got back from Syracuse and Gary looks and feels great. He's gained weight and lost the steroid bloat. The new medication for his stomach is really doing the trick .He is going for therapy twice a week and is planning on teaching an introductory course in the fall semester. He is so much stronger then my visit in May. He walks better and doesn't tire as easily as he had. And to all this I say pooh, pooh, pooh!
His next scans are Monday and he will get results on Tuesday. Prayers and good wishes are always welcome.

Susan

Scan

As of now Monday July 14, my next scan is scheduled for July 28 and I will meet with my Oncologist onaugust 1 to review the scan. I meet with him this friday and will likely change some of those appointments.

Bobby Murcer

I was very saddened to learn of Bobby Murcer's passing yesterday. He was diagnosed with Glialblastoma in December 2006 . It is impossible to compare his outcome to mine as, on thesurface there are , many differences in our treatments. He survived 19 months afterhisdiagnosis but was put on a diferent treament regiment than I was. It sounds like he was put on an experimentalvacci ne rightafter his surgery and was never given avastine. I have an appointment with my oncologist on Friday and I'll see if he knows anything else

Update

Had myregular, pretreatment blood work Friday. Good news was that myplatlette count was back to normal. but my red blood cout was down. Tbeen feeling much better.he oncologist said not toexert myself or do anything exhausting. Other thanthat I have been feeling much better, fewer headache and stomsches but fatigue is Hader-in-l a great visit from my sister-in-law Ellen and neice Cara . Also my friends from my LI days (now living inPhiladelphia), Sherman, Joyce andtheir son Steve. these visits from friends and family certainly help with my recovery. Physical activities help some of therecovery but talking certainly does much more. The bestIfeltafter surgery was when Iwas in the classroom interacting with students.

Gary
7/7/08

finally got enough hair for a hair cut

recent scan 6- 3 2009

the best news yet...

Gary just called after seeing his oncologist and he described the change as dramatic. That was the best adjective he could come up with to describe the the alteration that has taken place.
THERE IS NO SIGN OF TUMOR.
Gary will be continuing with Avastin every other week and temador evry three weeks but the steroids will start being cut back.
It is the absolute best news we could hope for. Thank you for prayers and good wishes.

Susan